Family ‘haunted’ after their four-year-old son dies of sepsis

Family ‘haunted’ after their four-year-old son dies of sepsis

BBC Lindita Alushi and Kastriot Klosi sit on a sofa holding a photo of DanielBBC

Lindita Alushi and Kastriot Klosi’s son Daniel was hospitalized four times before he died

The parents of a four-year-old boy who died of sepsis said his death will “haunt” them forever.

Daniel Klosi died on April 2, 2023 at the Royal Free Hospital in Camden, north London, after being admitted there four times within a week.

His mother Lindita Alushi and his father Kastriot Klosi, from Kentish Town urged parents to take it “very seriously” if they notice a sudden deterioration in their child’s health.

Her son was “probably” suffering from sepsis when he was examined by medical staff in the hours before his death, an inquest at East London Coroner’s Court heard earlier this month.

Family leaflet Lindita Alushi, Daniel Klosi and Kastriot Klosi smile into the cameraFamily handout

Ms Alushi and Mr Klosi said their son had been “abandoned” when he needed help most

During the examination it was found that the doctors had not diagnosed Daniel with sepsis, the Trust was not negligent in its due diligence.

In sepsis, the body’s immune system overreacts to an infection and begins to attack its own tissues and organs.

“Daniel’s death will always shock us and we remain shocked that he was abandoned when he needed help most,” Ms Alushi and Mr Klosi said in a statement.

PA Media Daniel Klosi (right) with his father Kastriot Klosi PA Media

Mr Klosi described his son Daniel, who was autistic, as a “lively boy”

“Losing Daniel like this will haunt us forever,” they said.

“He was our beloved boy and that he was taken from us so suddenly and cruelly is something we will never get over.

“Not a day goes by that we don’t think about him, and it’s difficult not to think that he should be at home with us.”

“Could it be sepsis?”

Ms Alushi urged parents who notice a “sudden change” in their child’s health, such as not eating, drinking, sleeping well or playing, to “take it very seriously” and go to the hospital.

She added that parents should ask their doctors, “Could it be sepsis?”

Ms Alushi added that Daniel’s death had “affected everything”.

“We humans have changed,” she said. “We are no longer the same.”

A black and white photo by Daniel

Ms Alushi and Mr Klosi said they miss Daniel’s “love and enthusiasm”

“Unanswered Questions”

The family said they had “so many unanswered questions” and “remain angry with the hospital trust”.

Daniel’s parents took him to the hospital four times a week, twice in one day.

The investigation found that Daniel, who is autistic, was admitted with “atypical sepsis symptoms” and that medical staff had a “lack of understanding” of how to address the needs of a neurodiverse child.

During individual visits, staff at the hospital in north London “missed or incompletely carried out medical examinations”, The investigation was also reported.

A spokesman for the Royal Free London expressed his “deep regret” at Daniel’s death while in his care.

Family handout / PA MEDIA Daniel Klosi lyingFamily handout / PA MEDIA

Lindita Alushi urged parents to remain persistent if they notice a “sudden change” in their child’s health

At his fourth visit, Daniel had sunken eyes, chapped lips, appeared severely dehydrated, had abdominal pain and was “quite agitated and appeared distressed,” the examination found.

“We would give anything to have Daniel back in our lives – we miss his love and enthusiasm so much – but we know that is not possible,” said Ms Alushi and Mr Klosi.

“All we can hope now is that no other family has to go through what we went through.”

PA Media outside the Royal Free Hospital in LondonPA Media

Daniel died at the Royal Free Hospital in Camden

A spokesman for the Royal Free London said: “This is a desperately sad case and we deeply regret that Daniel has died in our care.”

“We would like to express our deepest condolences to his family and loved ones.

“After a thorough investigation, we have identified a number of areas for improvement and have taken action to address them immediately.”

These include, she said, better training for staff in dealing with children who make repeated visits to the emergency department, the way the trust cares for children with learning difficulties and the importance of listening to parents’ concerns.

“We take the coroner’s findings seriously and will carefully review any issues identified to ensure that a tragedy like this never happens again,” they added.

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